EP: The Value of Patient-Reported Data


Dr Neo Tapela and Dr Mor Dickman dive into the critical importance of patient reported outcomes and the technologies that foster them to the ophthalmic industry.


Dr Neo Tapela – Dr Tapela is a physician, epidemiologist and healthcare innovator with over 10 years’ experience in health services and outcomes research, policy and program leadership. She is the Chief Scientific Officer at ICHOM (the International Consortium for Health Outcomes Measurement), a leading non-profit defining the health outcomes that matter to patients. ICHOM accomplishes this by empowering patient and clinical leaders to identify the most important results in care including survival, quality of life, functioning and the experience of care.  ICHOM’s standardized sets of patient-centred outcomes measures are evidence-based resources that help all actors in healthcare design, deliver, fund, and evaluate care based on outcomes that matter to patients. To date, ICHOM has developed 45 sets covering over 60% of the global burden of disease and implemented in over 400 care settings around the world.

Dr Mor Dickman – Dr Mor Dickman, MD PhD, is a consultant cornea and cataract surgeon at the University Eye Clinic Maastricht in the Netherlands. His clinical research focuses on improving patient outcomes for individuals with corneal diseases and cataracts. Mor co-chairs the ESCRS Registries, one of the largest IT projects in ophthalmology, and is a member of the ESCRS Research Committee, Digital Health Special Interest Group, and the European Medicines Agency (EMA) Healthcare Professionals Working group.

Key Takeaways:

  • Real data from patients: PROMs (patient reported outcome measures) are important because they provide information that is reported directly by patients without the interpretation from clinicians or anyone else on the health status of patients. Data from PROMs, along with clinician-reported outcome measures, can generate insights that drive high value patient-centred care.
  • Another piece of the puzzle: for Dr Dickman, PROMs help put data in context both in studies and clinical routine by providing additional means to capture both the personal and societal context of patients.
  • Useful for all: Dr Tapela explains that PROMS data can be used by patients to track their improvements, engage in shared decision making, as well as by doctors and hospital systems to see where improvements can be made in the quality of care.
  • Making better decisions for patients: Dr Dickman highlights the importance of identifying the discrepancy that can occur between clinical outcome measures and patient reported outcomes to make better decisions with patients.
  • A tremendous role: Dr Dickman notes the tremendous role for patient reported outcome measures to help evaluate new technologies and differentiate between products in terms of what they really deliver to patients and regulatory decision-making.
  • A revolution is near: Dr Tapela notes that patient-important outcomes can absolutely revolutionize the way that care is being delivered but points out that standardisation and transparency of data is key.
  • RayPRO: Rayner has developed a digital patient-reported outcome measurement tool that delivers real-world insights, while decreasing the administrative burden for both patients and surgeons.

Additional Resources:

International Consortium for Health Outcomes Measurement

Rayner’s RayPRO Platform

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